Why you shouldn’t keep your Parkinson’s Disease a secret | PD Blog

   parkinson's disease blog, parkinson's disease symptoms, parkinson's disease lifestyle, parkinson's disease diagnosis Major illness affects patients in different ways, from grief to worry to anger and fear, but bottling it up in bitterness is a sure way to make one’s self sicker, no matter if it is a bad cold or terminal disease.

Attitude can go a long way towards relief, hope and acceptance whenever the pain returns.

    With Parkinson’s disease there is no cure. But there are ways to alleviate the natural sequence of what we face.

    “Having a major illness is not the time for secrets,” says author, Journalist and consultant Joanne Reynolds, whose specialty is care giving for patients and care givers, especially extended family members.

    “The sooner you share all that is going on, the sooner you build a network of support, empathy and help,” when an ordeal promises to be protracted and possibly terminal.

parkinson's disease blog, parkinson's disease symptoms, parkinson's disease family, parkinson's disease diagnosis

Some patients may view their illness as an embarrassment or even an indignity depending on its origin when it is properly viewed as a mistake borne of as microscopic germ or virus or as a malfunction of the marvelous human body.

Keeping it a secret is unwise

 

Keeping it a secret is as unwise as making it the focus of all household activity which inflicts stress, wear and tear on everyone. This honesty and forthrightness  is why I am willing to share the surprising news I received at the Long Beach VA medical center this fall when I expected a diagnosis of arthritis or a pinched nerve. Instead, I have Parkinson’s Disease, incurable, not usually marked by a slow progression. Mine is in its earliest stages.

    “I guess we kind of dropped the bomb on you just now,” said neurologist Dr. Alexis Seegen. She was slightly apologetic but seemed to feel I could take it like an intelligent grownup.

    I was truly not shocked and dismayed, as anxious to come up with a wisecrack for my friends. One must suppose that this is a healthier response than alarm.

    But as I processed the many pamphlets and data on Parkinson’s Disease presented by the hospital staff I began realizing there is a true dearth of information on PD among the public at large. There are internet sources that provide information for it.

    But, there are only about one million PD patients in the U.S. compared to far more who suffer breast or ovarian cancer, AIDS, and other catastrophic illness which are far better known and publicized.

    If you or your family is not touched by PD. Chances are you will know little about it.

    The best known “celebrity” patient and advocate is actor Michael J. Fox who established a vigorous foundation.

    But worldwide even more people know of and revere famed boxer Muhammad Ali another activist.

    I am a relative nobody, but as a news reporter and writer I spent decades at a typewriter.

    And I have to say I don’t really recall being assigned a story on Parkinson’s Disease and the misery it causes. I will be doing some now.

    You can bet on that.

1 Comment

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