Tags archives: personalized medicine
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- I was diagnosed with Multiple Sclerosis late in life, at 51 years old and up until then I had always been very active. I spent many years as a Disc Jockey playing music making people feel good , and making them dance. I was scared and angry as you can imagine anyone in my position would be. My how t[...]
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- While on Face Book last night I saw that a wonderful friend had posted a story of her being at a grocery store and a couple in front of her had not enough money to pay for their groceries. Even as they put things back, they still did not have enough money. She thoughtfully asked the clerk how much[...]
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- With Thanksgiving behind us and Christmas right around the corner, I begin to think about what this year has meant to me and my family.
The year started out with my foot in a cast. February was my birthday, but a week later I was in the hospital with food poisoning. By March another trip to the[...]
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- Well, as you can see my life seems to be one issue after another...
I was trying to deal with my tumor and paralysis, not being able to work, my family was trying to adjust to the changes, it just seemed like nothing was right and I just wanted it to be normal again...but, what is normal?
Sinc[...]
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- My boyfriend and I recently adopted a new puppy. Some might call me an animal lover…but that might be an understatement. Ever since I was a child I have loved the companionship of our family pets. Although this puppy, through all of her cute, playful antics has reminded me how much work they are to[...]
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- Transmission of hepatitis occurs when blood from someone with the virus enters the bloodstream of another person. The virus is not passed on through general day to day contact between people. Because of this, there is negligible risk in the workplace – except for certain sectors such as skin penetra[...]
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- My beautiful daughter Kelsi turns 3 this week and I can hardly believe it. I am overwhelmed with my love for her and the daily joy that she provides to our family. Kelsi’s Corner is a gift to her as a thank you for transforming me into a better mother and a better human being. She is the light o[...]
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- Originally, they had told me no treatment was needed, but there were still many unanswered questions. My tumor was not a typical astrocytoma. The oncology doctor had advised us to start radiation as a precaution. But, I was afraid to and not too.
The thought of losing my hair, oh my gosh...I h[...]
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- As I said it can only happen to me…
The day has come to see the plastic surgeon and give him my decision as to whether to have surgery on my eye socket and also the visit to the primary care doctor that I missed when I fell on my face. I had taken off the walking cast and decided to see what hap[...]
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- One of the things that surprised me when I first became a patient advocate for Sanguine BioSciences was how “normal” all of my patients were. Many of the diseases we work with on a daily basis have names that sound scary, like Parkinson’s, Alzheimer’s, and Lupus. Most of us picture these people with[...]
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- I have many thoughts to share about my recent adventures on crutches, but given that we just celebrated Father’s Day, I am moved to talk about my dad...more specifically, the father I met when I was diagnosed.
I honestly did not spend much time with my father before my diagnosis. My parents were t[...]
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- The month of May was quite literally the perfect storm when it comes to MS. Last week I wrote about how hard it is to keep up with everyday life when you have this disease. I want to talk about how different aspects of life can actually impact MS.
When I say that it has been the perfect storm, I’m[...]
