Tags archives: patient advocates
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- I was diagnosed with Multiple Sclerosis late in life, at 51 years old and up until then I had always been very active. I spent many years as a Disc Jockey playing music making people feel good , and making them dance. I was scared and angry as you can imagine anyone in my position would be. My how t[...]
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- While on Face Book last night I saw that a wonderful friend had posted a story of her being at a grocery store and a couple in front of her had not enough money to pay for their groceries. Even as they put things back, they still did not have enough money. She thoughtfully asked the clerk how much[...]
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- My boyfriend and I recently adopted a new puppy. Some might call me an animal lover…but that might be an understatement. Ever since I was a child I have loved the companionship of our family pets. Although this puppy, through all of her cute, playful antics has reminded me how much work they are to[...]
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- Transmission of hepatitis occurs when blood from someone with the virus enters the bloodstream of another person. The virus is not passed on through general day to day contact between people. Because of this, there is negligible risk in the workplace – except for certain sectors such as skin penetra[...]
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- October is Down syndrome awareness month, and as I thought about what to be aware of the word retarded continued to come to mind. You see, in many ways this word haunts me and the many others who live and love people with mental disabilities. As I thought about what to write and how to express my [...]
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- ‘‘…. I never had the opportunity to listen as people spoke on viral hepatitis until my first job appointment…..”
There is a societal stigma about hepatitis. In Ghana, infected people are alienated by the society. Others are also isolated within their families, hidden away from visitors or made to[...]
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- One of the things that surprised me when I first became a patient advocate for Sanguine BioSciences was how “normal” all of my patients were. Many of the diseases we work with on a daily basis have names that sound scary, like Parkinson’s, Alzheimer’s, and Lupus. Most of us picture these people with[...]
