Having Multiple Sclerosis means facing many life changes. Some happen slowly over time and some are immediate. I wrote previously about being thankful for being diagnosed young because the changes were easier to deal with. This is still true but there may be a little more struggle behind that tha[...]
Participating in research is a difficult decision and I believe every person needs to be fully informed when making this decision. Of course every study is different so the same opinion cannot be applied every time you are asked to become a research “subject.” Here is what I keep in mind with each[...]
With the passing of Thanksgiving and Christmas songs and decorations popping up everywhere, one thing is obvious: holiday madness has arrived.
The holidays are a time to be cherished by many but they also come with a lot of chaos.
Shopping in busy stores
Budgeting for extra expenses[...]
Anyone who has gone through a diagnosis knows that no matter how many people are supporting you, you are utterly, and completely alone. My diagnosis felt like it was never going to end. Ironically, I was craving a diagnosis by the time I actually got one, simply because of the grueling process. I[...]
WELCOME TO THE WORLD, WELCOME TO LIFE!
This is how I felt when I was diagnosed with MS at twelve years old. Suddenly I felt like I was alive! Now, make no mistake, I am not entertaining any illusions that having a chronic illness is a fun walk in the park. Because, it is NOT. But my diagnosis c[...]
The statistically typical person newly diagnosed with Multiple Sclerosis is a female, around the age of 35, and Caucasian. When I was diagnosed the only one of those “typical” things that fit me was being female. I’m a Spanish/Mexican/Austrian mutt (so, only slightly Caucasian) and I was still a d[...]
Being diagnosed with Multiple Sclerosis was an experience to say the least. I simply say “an experience” because even after 4 years I still don’t know how to describe it. It wasn’t easy but it wasn’t as hard as it could’ve been either. It wasn’t excruciatingly unbearable but it was painful in man[...]
Did you know that something as simple as donating 4 tablespoons of blood can help accelerate research for your disease?
Researchers from around the world use biospecimens such as blood and cerebral spinal fluid (CSF) to find new ways to treat diseases. The problem is, researchers do not have imme[...]