Tags archives: MS
Getting the Cold when you have MS | MS BLOG
- You may have noticed my blogging frequency dropped a bit the last couple weeks. As if having MS isn’t enough, I’ve been fighting a cold since Christmas Day. Being “normal sick” (i.e. cold, flu, infection, etc.) when you have a chronic illness is a whole new level of “sick.” Having an auto-immune [...]
Medical System Obstacles - Infusion Day Part 2 | MS Blog
- Earlier this week I posted about how I managed to turn Infusion Day into a positive experience. Unfortunately though, Infusion Day is not only in my hands. I can’t pretend that things are always butterflies and rainbows and that I’m always capable of seeing things that way. Some things are frustr[...]
My New Year's Resolutions for My MS | MS Blog
- As I've said before, life with Multiple Sclerosis involves constant adjustment. I figure there is no better time to reflect on these adjustments and make changes for the better than the start of a New Year. 2012 has been an amazing year with a lot of really positive life changes for me but I also [...]
Why I Joined a Multiple Sclerosis Support Group | MS BLOG
- Everyone can relate to the feeling of being alone. We have all been to that point where something happening in our life makes us feel like we are the only person in the world going through it. It's that desperate feeling of being totally on your own with no one to help you work through it. These [...]
Turning MS Treatment Into A Positive: Tysabri Infusion Day Part 1
- My current MS treatment is Tysabri - a somewhat new medication that I receive through a monthly infusion. Infusion just means that I get the medication through an IV at the hospital. Anyway, I started receiving Tysabri in 2008 and each infusion is supposed to take two hours. Unfortunately, the cur[...]
My 5 Favorite MS Friendly Foods | Multiple Sclerosis Blog
- Eating healthy is an important choice for anyone to make not just those with Multiple Sclerosis. When we are young with perfect metabolisms the question of what we put into our body doesn't seem to be as important but as we grow older the effects of a poor diet are quickly noticed. Those with chroni[...]
Why I disagree with the phrase: "I have MS, MS Doesn't Have Me"
- From early on in my diagnosis I kept hearing the phrase: “I have MS, MS Doesn’t Have Me.” It can be a very powerful phrase for people and can be used to remind them that MS does not run their life. Ideally, it empowers people to overcome their illness. The phrase is used all over the patient advo[...]
Learning to Laugh About My Illness
- During my diagnosis, there were days when, while I still didn’t know what was going in my body, and while I still could not sit through class because of my symptoms, I just wanted to be at school. I was blessed that Kadima Hebrew Academy was very understanding and allowed me to come to school durin[...]
Daily life with MS: Intensified Effects
- In case you didn't catch on with my previous posts: life with Multiple Sclerosis is life with constant challenge and adaptation. Living with MS, especially Relapsing-Remitting MS, isn't always a daily struggle but sometimes that makes the struggles even harder to deal with when they do come. [...]
Everyone Is Affected by Illness | Multiple Sclerosis Blog
- I was sitting in my living room in Los Angeles last week with my flatmate Charlotte* and our friend Elran*. As they were asking about my blog and Sanguine’s work we got on the topic of illness. Suddenly we realized that all three of us are personally affected by disease. While each of our illness[...]
5 Life Changes with MS Part 2: Later Developments
- In my last post I talked about some of the immediate life changes that occur with Multiple Sclerosis but change doesn't only happen immediately. Some aspects of life that change with MS involve slow adaptation and often require a trial and error type learning process. Some areas of my life that [...]
Personalized Medicine | What Makes Sanguine's Research DIfferent
- I realize that with this post and my last post we are taking a little detour from my personal story. I want to cover many topics here that speak to all people - patients with different diseases, support systems, and the average healthy person too. In my last blog you read about why I am personally[...]