Tags archives: MS
Today Is Another Day....
- I was diagnosed with Multiple Sclerosis late in life, at 51 years old and up until then I had always been very active. I spent many years as a Disc Jockey playing music making people feel good , and making them dance. I was scared and angry as you can imagine anyone in my position would be. My how t[...]
MS Affects the Whole Family - Father's Day Edition
- I have many thoughts to share about my recent adventures on crutches, but given that we just celebrated Father’s Day, I am moved to talk about my dad...more specifically, the father I met when I was diagnosed. I honestly did not spend much time with my father before my diagnosis. My parents were t[...]
Facing The Perfect Storm - When MS Triggers Collide | MS Blog
- The month of May was quite literally the perfect storm when it comes to MS. Last week I wrote about how hard it is to keep up with everyday life when you have this disease. I want to talk about how different aspects of life can actually impact MS. When I say that it has been the perfect storm, I’m[...]
My Inconsistency as a Blogger & In Relationships
- I’m sorry! I finally started blogging again in April after a brief lapse and then I lapsed again. For good reason of course, but still, how on earth can I maintain a relationship with my readers if I “disappear” sometimes. Every relationship needs some level of consistency. My interaction with m[...]
A Dreamer With MS - Annette Funicello's Legacy
- Two weeks ago today the world lost Annette Funicello. For most people my age, Annette’s name is vaguely familiar, but many of us don’t even know why we recognize her name. For our parents and grandparents however, Annette is the little girl who was handpicked by Walt Disney at the ripe age of 13, [...]
When I Plan and MS Laughs - Told in Real Time
- I had the following plan for this evening: attend my weekly class on Judaism, prepare my juices for tomorrow, and finish my Annette Funicello blog to post this week. Well that’s all fine and dandy except for that little thing called “life” and that other thing called “MS.” Here’s what actually[...]
"Normal" Life Transitions When You Have MS - Why My Blog Went Dark
- Hi there! Welcome back! Or I guess I’m the one coming back...either way, it’s good to be here again. So, where on earth did I go? I’m glad you asked, let me tell you! Over the last month, three big things happened: I moved, celebrated Passover, and participated in Walk MS. This year, these thr[...]
Daily Life with MS: Feeling Down
- I am sure some of you readers have noticed my absence in the past month or so. I apologize for leaving anyone hanging but I had to take a "me" break, some time off for MS and "our" depression. That probably sounds like a horribly cliche copout but I am just being honest with you. Acceptance seems[...]
Injections Available for MS
- Today I will begin a brief overview of the treatments for MS since a few people have asked for this and it is MS Awareness Week after all. Anyone affected by MS should take the time to educate themselves about all aspects of this disease, whether you are the patient or you are a loved one. There i[...]
The New World of MS Treatment
- Today there are nine available drugs for MS. NINE!!! Quick sidenote: Treatments that are used to treat the entire illness are called Disease Modifying Therapies - DMTs - and that is how I will refer to them here. Many people also take other medications that treat specific symptoms, like Provigil[...]
Being an Independent Woman Means Something Different With MS
- I recently had an experience that made me face an enormous fear that I have - being DEPENDENT. I am not sure I had fully realized just how much this fear weighs on me. But once I realized it, the feelings just came flooding out. So be prepared because I’m about to bare my soul. Part of the hu[...]
Flying with Needles
- I am traveling to New York this week and what came to mind in my packing preparation was RELIEF. I suddenly realized that packing & traveling is so much easier now that I don’t give myself injections. When I was diagnosed, my first medication was Copaxone, a daily injection. It was a great dr[...]