Tags archives: kaley
Multiple Sclerosis - The Gift that Keeps on Giving | MS Blog
- In one of my first blogs I wrote about how MS changed my life I only touched on it briefly and it is such an important topic that I have a feeling it will come up in many different ways in my blog posts. My diagnosis really brought about a paradigm shift in my life. Since I was only twelve years [...]
When Small Decisions Become Epic Novels with MS | MS BLOG
- Today I’m writing from beautiful green Oregon where my mom’s side of the family lives. I was talking with my Aunt Debbie about my blog and my role at Sanguine BioSciences when she brought up a great topic for this blog. Well, several great topics but today I’ll choose to talk about the difficul[...]
The Challenge of Finding a Good Doctor Part 2 | MS Blog
- I am super excited to write this blog! Why? Because it was inspired by someone who is the PERFECT EXAMPLE of a GOOD DOCTOR, and I don’t have to tell you how hard that is to find! As you know from last week’s blog, I was fighting a bad cold. I finally went to Urgent Care because my own Primar[...]
The Challenge of Finding a Good Doctor - Part 1| MS BLOG
- Get ready for another two parter! Today’s blog will focus on finding the right neurologist and Part 2 will address the challenge of dealing with any other doctor for general purposes, such as your primary care physician, or the doctor in Urgent Care. As a patient advocate for thirteen years alr[...]
Getting the Cold when you have MS | MS BLOG
- You may have noticed my blogging frequency dropped a bit the last couple weeks. As if having MS isn’t enough, I’ve been fighting a cold since Christmas Day. Being “normal sick” (i.e. cold, flu, infection, etc.) when you have a chronic illness is a whole new level of “sick.” Having an auto-immune [...]
Medical System Obstacles - Infusion Day Part 2 | MS Blog
- Earlier this week I posted about how I managed to turn Infusion Day into a positive experience. Unfortunately though, Infusion Day is not only in my hands. I can’t pretend that things are always butterflies and rainbows and that I’m always capable of seeing things that way. Some things are frustr[...]
Turning MS Treatment Into A Positive: Tysabri Infusion Day Part 1
- My current MS treatment is Tysabri - a somewhat new medication that I receive through a monthly infusion. Infusion just means that I get the medication through an IV at the hospital. Anyway, I started receiving Tysabri in 2008 and each infusion is supposed to take two hours. Unfortunately, the cur[...]
Why I disagree with the phrase: "I have MS, MS Doesn't Have Me"
- From early on in my diagnosis I kept hearing the phrase: “I have MS, MS Doesn’t Have Me.” It can be a very powerful phrase for people and can be used to remind them that MS does not run their life. Ideally, it empowers people to overcome their illness. The phrase is used all over the patient advo[...]
Learning to Laugh About My Illness
- During my diagnosis, there were days when, while I still didn’t know what was going in my body, and while I still could not sit through class because of my symptoms, I just wanted to be at school. I was blessed that Kadima Hebrew Academy was very understanding and allowed me to come to school durin[...]
Everyone Is Affected by Illness | Multiple Sclerosis Blog
- I was sitting in my living room in Los Angeles last week with my flatmate Charlotte* and our friend Elran*. As they were asking about my blog and Sanguine’s work we got on the topic of illness. Suddenly we realized that all three of us are personally affected by disease. While each of our illness[...]
Personalized Medicine | What Makes Sanguine's Research DIfferent
- I realize that with this post and my last post we are taking a little detour from my personal story. I want to cover many topics here that speak to all people - patients with different diseases, support systems, and the average healthy person too. In my last blog you read about why I am personally[...]
Top 3 Reasons why I participate in Research | Multiple Sclerosis
- Participating in research is a difficult decision and I believe every person needs to be fully informed when making this decision. Of course every study is different so the same opinion cannot be applied every time you are asked to become a research “subject.” Here is what I keep in mind with each[...]