Tags archives: kaley
A Dreamer With MS - Annette Funicello's Legacy
- Two weeks ago today the world lost Annette Funicello. For most people my age, Annette’s name is vaguely familiar, but many of us don’t even know why we recognize her name. For our parents and grandparents however, Annette is the little girl who was handpicked by Walt Disney at the ripe age of 13, [...]
When I Plan and MS Laughs - Told in Real Time
- I had the following plan for this evening: attend my weekly class on Judaism, prepare my juices for tomorrow, and finish my Annette Funicello blog to post this week. Well that’s all fine and dandy except for that little thing called “life” and that other thing called “MS.” Here’s what actually[...]
"Normal" Life Transitions When You Have MS - Why My Blog Went Dark
- Hi there! Welcome back! Or I guess I’m the one coming back...either way, it’s good to be here again. So, where on earth did I go? I’m glad you asked, let me tell you! Over the last month, three big things happened: I moved, celebrated Passover, and participated in Walk MS. This year, these thr[...]
Injections Available for MS
- Today I will begin a brief overview of the treatments for MS since a few people have asked for this and it is MS Awareness Week after all. Anyone affected by MS should take the time to educate themselves about all aspects of this disease, whether you are the patient or you are a loved one. There i[...]
The New World of MS Treatment
- Today there are nine available drugs for MS. NINE!!! Quick sidenote: Treatments that are used to treat the entire illness are called Disease Modifying Therapies - DMTs - and that is how I will refer to them here. Many people also take other medications that treat specific symptoms, like Provigil[...]
Being an Independent Woman Means Something Different With MS
- I recently had an experience that made me face an enormous fear that I have - being DEPENDENT. I am not sure I had fully realized just how much this fear weighs on me. But once I realized it, the feelings just came flooding out. So be prepared because I’m about to bare my soul. Part of the hu[...]
Flying with Needles
- I am traveling to New York this week and what came to mind in my packing preparation was RELIEF. I suddenly realized that packing & traveling is so much easier now that I don’t give myself injections. When I was diagnosed, my first medication was Copaxone, a daily injection. It was a great dr[...]
What is Patient Centric Medicine
- As one of the founders of Sanguine BioSciences, I am incredibly passionate about Personalized Medicine. But as a patient, I am so out-of-this-world EXCITED for this new era to be ushered in. I feel like it can’t come soon enough! In some ways it is already here and in other areas we have a ways t[...]
Why I Don't Like Valentine's Day
- So I’m not the biggest fan of Valentine’s Day.... and figured in honor of this twisted holiday I would just share my two cents Of course I arrived at my opinion of Valentine’s Day largely through the lessons of my MS diagnosis. I learned at a very early age that “You Only Live Once.” As clic[...]
How to Date The Best When You Have MS | MS Blog
- Wow the topic of Relationships can be pretty loaded! I’m gonna break it down since this is something I could write about until the end of my days. And hopefully I will! Between my personal experiences and having a degree in Marriage and Family Therapy, there’s a lot of wheels turning in my bra[...]
Your Health Care SUPERBOWL Team
- Let’s talk Football I know it’s on everyone’s mind and it provides a great metaphor for your healthcare. Managing your health when you have a chronic illness involves many players. I think it is important for both outsiders and patients alike to understand just how complex of a team it takes to [...]
Cognitive Symptoms with MS | MS Blog
- One of the many difficulties of having multiple sclerosis, is that many of the symptoms are “invisible.” I’ll get on my soap box about the phrase “but you look so good!” another time. For now, I just want to focus on the cognitive component of MS. Before my diagnosis I was a straight “A” studen[...]