Author archives: Kaley Zeitouni
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- So I’m not the biggest fan of Valentine’s Day....
and figured in honor of this twisted holiday I would just share my two cents
Of course I arrived at my opinion of Valentine’s Day largely through the lessons of my MS diagnosis. I learned at a very early age that “You Only Live Once.” As clic[...]
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- Wow the topic of Relationships can be pretty loaded!
I’m gonna break it down since this is something I could write about until the end of my days. And hopefully I will!
Between my personal experiences and having a degree in Marriage and Family Therapy, there’s a lot of wheels turning in my bra[...]
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- Let’s talk Football
I know it’s on everyone’s mind and it provides a great metaphor for your healthcare. Managing your health when you have a chronic illness involves many players. I think it is important for both outsiders and patients alike to understand just how complex of a team it takes to [...]
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- One of the many difficulties of having multiple sclerosis, is that many of the symptoms are “invisible.” I’ll get on my soap box about the phrase “but you look so good!” another time. For now, I just want to focus on the cognitive component of MS.
Before my diagnosis I was a straight “A” studen[...]
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- In one of my first blogs I wrote about how MS changed my life
I only touched on it briefly and it is such an important topic that I have a feeling it will come up in many different ways in my blog posts. My diagnosis really brought about a paradigm shift in my life. Since I was only twelve years [...]
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- Today I’m writing from beautiful green Oregon where my mom’s side of the family lives. I was talking with my Aunt Debbie about my blog and my role at Sanguine BioSciences when she brought up a great topic for this blog. Well, several great topics but today
I’ll choose to talk about the difficul[...]
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- I am super excited to write this blog!
Why?
Because it was inspired by someone who is the PERFECT EXAMPLE of a GOOD DOCTOR, and I don’t have to tell you how hard that is to find!
As you know from last week’s blog, I was fighting a bad cold. I finally went to Urgent Care because my own Primar[...]
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- Get ready for another two parter!
Today’s blog will focus on finding the right neurologist and Part 2 will address the challenge of dealing with any other doctor for general purposes, such as your primary care physician, or the doctor in Urgent Care.
As a patient advocate for thirteen years alr[...]
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- You may have noticed my blogging frequency dropped a bit the last couple weeks. As if having MS isn’t enough, I’ve been fighting a cold since Christmas Day. Being “normal sick” (i.e. cold, flu, infection, etc.) when you have a chronic illness is a whole new level of “sick.” Having an auto-immune [...]
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- Earlier this week I posted about how I managed to turn Infusion Day into a positive experience. Unfortunately though, Infusion Day is not only in my hands. I can’t pretend that things are always butterflies and rainbows and that I’m always capable of seeing things that way. Some things are frustr[...]
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- My current MS treatment is Tysabri - a somewhat new medication that I receive through a monthly infusion. Infusion just means that I get the medication through an IV at the hospital. Anyway, I started receiving Tysabri in 2008 and each infusion is supposed to take two hours. Unfortunately, the cur[...]
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- From early on in my diagnosis I kept hearing the phrase: “I have MS, MS Doesn’t Have Me.” It can be a very powerful phrase for people and can be used to remind them that MS does not run their life. Ideally, it empowers people to overcome their illness. The phrase is used all over the patient advo[...]
